Saturday, May 18, 2013

YOUR THERMOSTAT IS BROKEN



Have you ever had a room temperature control tug-of-war with someone?  I’ve had some very heated ones throughout my lifetime.
In the 80’s I had a window war with a co-worker. She would constantly open the window in our office; it didn’t matter if the temp was 10 or 100 degrees outside. Drove me crazy, she would open, I would close, she would open, and I would close…Oh how I welcomed her days off.
In the 90’s I had a temperature tiff with the company’s maintenance man, who kept our office thermostat at “frozen tundra.”  It’s hard to be productive with mittens and a ski mask.  When he wasn’t around, I would use my lock picking tools (bobby pin in my hair) adjusting the temp to normal human-like conditions.
In the 2000’s I battled with my Ford Focus, nearly tearing it apart trying to figure out how to add Freon, so that I could arrive at my destinations not looking and smelling like a zoo animal. When your TSH levels are on the hyper side, the heat you can experience is like no other.
Today My husband and I are in the middle of a ceiling fan fracas, which is just like the window war, but the “on and off” interchange is sometimes done unconsciously. Even when I’m asleep, my body is fighting to feel comfortable.
 

Throughout my life, I think those body temperature issues and the tenacity to feel comfy, was an indication of the thyroid disease which was unknown to me at the time. I had no idea until I was diagnosed with Graves’ disease that the thyroid plays such an important role in body temperature.
Others don’t understand what it is like to have your internal thermostat broken. Under extreme conditions, climate control is of the essence, it is hard to concentrate on anything else at that point.  Right now, in most parts of the world you are heading into seasonal weather change, I hope my fellow battle-tested thyroidians win the fight for comfort.
 Crazy Thyroid Lady
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Sunday, May 5, 2013

THYROID MAMA CALLS A FAMILY MEETING





**Where’s my?
**Why didn’t you remind me?
**How come you are just now telling me?
**Did you forget to?
Thyroid suffering mothers, do these statements sound familiar?
There are two males in our household (my husband and teenage son) and before thyroid disease, I kept things in order, kept my boys in line - managed things well. You could even say that mama ran a tight ship. But now, that ship has sailed...annnndddd I’m totally OK with that.
But, I’ll have to admit, that immediately after my diagnosis, I wasn’t OK with the domiciliary disarray that ensued. At present, I’ve come to terms and realized that I can’t and shouldn’t be omnipotent-like to my brood. I am not the same as before, I’m not the same as before, I’m not the same as before... Ahhhh so liberating to say... acceptance is key.
It took me awhile to embrace this concept. Remember my other blog post about going crazy http://crazythyroidlady.blogspot.com/2012/09/go-crazy.html .  To remain sane, I had to go crazy Conserve, Restore Adding Zest to You.

After years of hearing those above phrases from my guys over and over again for many years, I felt it was time to call a family meeting:

"I used to juggle my life and yours with ease, but men, we’ve embarked on a new era. An era that focuses on the realization that undue stress is not ideal for yours truly. At one time I reveled in the all consuming management of this household, even though it may not have been healthy, I had it mastered. But now remembering just my stuff is almost a full-time job. I am asking you to take on more responsibilities around the house.
OK, so...I don’t know where it is, I’m not going to know where it is, I forgot to tell you...let’s get over it, I could try to remind you, but is this a risk you are willing to take? 

Well, now that we got this out of the way, you guys can make dinner while mama takes a nap. Love ya!"
In reality, this is probably how it should have been all along, after all, experts say giving your kids more responsibilities will build confidence and increase self-esteem. And it will help hubby feel like da man! I like to find as many positive as I can post-disease.
Crazy Thyroid Lady

Don't forget to get your copy of my thyroid book Wow Your Mom Really is Crazy

Sunday, April 7, 2013

JUST KEEP SWIMMING - THYROID RAP or THRAP



Just Keep Swimming
Can be rapped to the rhythm of your choice, if you have someone that can beat box along with you…even better!
The hooks, the hooks they’re all around
Trying to reel me in, trying to make me sin
This disease has me feelin’ like a fish out of water, I wish I could cast spells on it like Harry Potter

I’m a thyroid mutha don’t mess with me,
Trying to avoid the hooks, trying to stay free
Just keep swimming; just keep swimming I can’t put that (Bleep) in my body

Cuz the hooks make me sicker,
The hooks make me quiver,
I am not quicker when the hooks grab my zipper.

What are the hooks, what do they represent?
It’s what makes me operate at 30 percent.
The Gluten
The Sugar
The Processed foods
The alcohol
The Stress –putting me in bad moods
The hooks are negativity
Bad vibes all around me
I’ve been researching the hooks like Madame Curie
If I don’t just keep swimming my body will disagree

I’m a thyroid mutha don’t mess with me,
Trying to avoid the hooks, trying to stay free
Just keep swimming; just keep swimming I can’t put that (Bleep) in my body

 Move over Missy Elliot make room for
The Crazy Thyroid Lady

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Saturday, March 30, 2013

IT'S OVER...FINALLY

Why did even try to reconcile? Why?...I’ve finally had enough, It’s over…She will not get custody or visitation rights of my thyroid, I am through… FOREVER!
OK, long story short, here’s what happened:
·   Referred to Endo over 8 years ago.
·   Endo recommended Radio Active Iodine or (RAI).
·   Got RAI, but was then prescribed T4 only (I accepted this, even 
     though I did not feel well, because I did not know any better).
·  Divorced Endo years later, after suffering for so long, realizing I 
    could have tried a T3 drug that would perhaps make me feel 
    better.
·   Went to another MD who tested my T3. My T3 was off and
    started taking T3 right away.
·  However, the new MD didn't accept insurance and the
    appointments were getting to be too costly.
·  Reconciled with my old doc, but told her the only way I would
   come back is if she prescribed T3.
·  Old Endo said yes and prescribed T3 for several years.
·  A few months ago, I called my old Endo and said for some
    reason my thyroid meds were making me sick to my stomach (I
    let her know I had been eating a very very clean diet at the
    time).
·  She took me off T3 and Levoxyl and put me on Tirosint (a T4 
   only drug without dyes and preservatives). 
·  I reluctantly agreed with the treatment plan at the time, but
   then I started to feel horrible, the same way I felt nearly 8 years
   ago, without T3.  I told her I wanted back on T3 or at the very
   least test my T3 to see if my body needs it.
· She refused, without explanation…I didn’t bother asking,
   because I know she never wanted to give me the T3 in the first
   place, needless to say I was done.
So there you have it… that was the last straw! Time to leave this abusive relationship! It made me realize this Endo doesn’t care about me; I am just another troublesome-TSH-testing-T4–only- thyroid patient in her aesculapian assembly line.  I mean come on doc… it is just a test, not like I was asking you to come over and do my dishes.
Anyway…enough about her. I found the Holy Grail of providers. She is a nurse practioner with prescriptive authority, which means she can prescribe medications and tests (T3 tests, reverse, free..etc. NOT just TSH). This woman reeled me in hook, line and sinker when she said “Carol, the TSH test is just a small piece of the puzzle, it doesn’t tell the whole story, I’ll run a full workup on you and if you need T3, I’ll give you T3.”
I gushed…I think this is the one…she’s a keeper!
The Crazy Thyroid Lady
Don't forget to get your copy of my thyroid book Wow Your Mom Really is Crazy

Sunday, March 17, 2013

VACATION TIPS FOR THE THYROID SUFFERER


 
My husband came home the other day with a lovely surprise.  “Honey, we are going to Mexico for our 20th wedding anniversary,” he said.  I was so excited.  Yea! I’ve never been to Mexico…Oh wait a minute…have I?
Isn’t it a shame, that I must think really hard about something like that? 
But with thyroid disease, comes a chalk full of symptoms, affecting various areas of the body, READ fellow thyroid activist, Hypothyroid MOM’s blog post and symptom list.  Symptoms can be far worse for some and not that bad for others…For example, for some, the fatigue is almost unbearable; for others, it is the joint pain.
As for me, without a doubt, hands down…it is my memory and brain fog.  Alright, so let me see…Hmmm, OK…I used to work for an airline… and I was able to fly for free…have I been to...?? Ummmm nope, I’m pretty sure I’ve never been to Mexico. Yippee!  We are going to have fun!
Since my brain cells have decided to take their own permanent vacation, I have had to come up with five tips to help make all my excursions more memorable:

 
1.  Say CHEESE! Of course this is the obvious – take many pictures and shoot video footage, if you can. Don’t be too annoying that you make this a stressful event for everyone involved.
2. Play games! A great way to spend some quality fun time. Laughter can stimulate parts of the brain promoting a better memory. 
3. Scrap it! Collect/save brochures, ticket stubs, maps etc… then make a scrap book when you return.  It makes for a nice keepsake and it will help you recall certain adventures of your trip.
4. Find a happy medium! Don’t schedule too many guided tours, however you want to do a little planning.  If you rely on spontaneity throughout your entire trip, you may not do anything and conversely, If the vacation is too action packed, it becomes one big blur.  Those are the types of vacations where you need a vacation, after the vacation.
5. Save the best for last! A sunlit walk on the beach, dine at your favorite bistro or visit the attraction you’ve always wanted to see.  Psychologists say we are more likely to remember events which occur at the end of something. Ahhh, that moist, delicious icing on the cake!

If I don’t do some or all of these tips, my time away becomes, well…just a time away.  It was great at the moment, but many many years from now I could be saying…Hmmm let me see, have I ever been to Mexico?

Crazy Thyroid Lady

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Wow Your Mom Really is Crazy

Saturday, March 9, 2013

YOU KNOW YOUR THYROID HORMONE LEVELS ARE OFF WHEN...



Top ten ways, you know your thyroid hormone levels are off:






1.  You are watching a television show and during the commercial break, you totally forget what television show you are watching. Hmm…what do I have on… Downton Abbey or CSI?
2. Your arguments with your significant other end in… “Oh whatever.” Because you can’t think of anything else to say.
3. You can’t remember if or when you took your thyroid medication(s), the same medication that will likely help get you back to your normal levels.
4.  You are no match intellectually with your children (or any household pets).
5.  It doesn’t matter what is the forecasted weather, you know, you will either need to wear a parka (hypo) or anything sleeveless (hyper) to work.
6.  You are sleepy in the morning, after coffee, before lunch, during lunch, after lunch and when the sun goes down.
7.  Forgetting something is taken to a whole other level…it is not like something normal like forgetting where you placed your keys. It is like forgetting your address, the ages of your children or the make/model and color of your car.
8.  You are looking, looking…I mean seriously looking…tearing the house apart. You are putting a lot of effort into this organized bloodhound and rescue type-search. This search has been going on for the past 60 minutes…then suddenly on the 62nd minute, you forgot what you were searching for (time for a nap).
9. You look at a simple word like “THE”…cock your head sideways and say, “Is that how you spell that word?”
10.Your train of thought is like the little engine that couldn’t.

 But of course, for me…most of these thyroid hormone-related issues hardly ever happen… because, well… my Endo says my TSH is primarily “within normal range.” (sarcasm)
Crazy Thyroid Lady
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Sunday, February 24, 2013

WHICH ANIMATED CHARACTER DID/DO YOU RESEMBLE?



An undiagnosed or a mismanaged thyroid condition can have a person not acting like themselves. In fact, when I was at my sickest, the mood swings I would experience were unbelievably dramatic…like, cartoon character dramatic. Looking back on it, I have not doubt in my mind that at one point in time close family members, friends and co-workers said to themselves…”Ooookkkkkkkkk, why don’t we give Carol some space.”

          Examples of my animated alternating personalities

Brain Fog









Hyperthyroid















Irritability














Depression
 












Mega Brain Fog


















Paranoia

















Pretty much all the time














Weepy













Hypothyroid (with the hair loss)















But there was one animated character that at NO time during this cartoon carousel from Hell did I ever resemble:

















I am sorry to say, my house is still a mess, since my diagnosis almost 10 years ago!


I want to hear from you, which cartoon character (s) did or do you relate to the most, when it comes to your thyroid disease?

Crazy Thyroid Lady

Don't forget to get your copy of my thyroid book Wow Your Mom Really is Crazy