Sunday, October 13, 2013

EVERYBODY WAS FORUM FIGHTING

Forum - an assembly, meeting place, television program, etc., for the disscusion fo questions of public interest.

Thread - A set of posts on a forum, composed of an initial post about a topic and all responses to it.

If you've vistied a social media forum for those with thyroid conditions, you've probably read, started or contributed to some "forum fighting". Unfortunately, a little non-love can break out at any moment in these support groups. But, I hope this doesn't deter you from going back because, for the most part, there's a lot of great information and camarderie amongst these groups.
If you want to stay away from any forum fighting, these are the things to avoid:
The MAIN three topics to avoid in a thyroid forum:
     1. Healthy diet - DIET is the most horrendous four-letter word, don't ever bring up eating a healthy diet...EVER!

     2. Exercise
     3. Saying, "You may not feel well even after conventional treatments" - ... adding that it may take a lifestyle change. Ooohhh these are figting words.

Also avoid:

     1. Not answering the initial question on a forum post.
          Q. How much vitamin D do you all take?

           A. You should talk to your doctor.(This response is frustrating because this may be the same doctor who refuses to test their T3, what do you think they are going to say about vitamin D...nada)

     2. Telling someone to "Do their research" - Can come across as dissmissive and condescending. Getting on the forums and asking questions could be a part of their research.

     3. Telling someone to "Talk to their doctor" - I'm pretty sure you won't get sued if you decide not to use this disclaimer on an internet thyroid forum.

     4. Using harsh tones when you are passionate about a subject.

          Q: I'm thinking about getting my thyroid removed, has anyone had this done? Please tell me your experience.

          A: Why in the world would you do this to yourself? I would never do this!

     5. People who are looking for personal experiences and are bombarded by Googled links (This may also fall into category of not answering the question)

          Q. Has anyone tried CoQ10, if so, how did it make you feel (keywords here are "how did it make YOU feel".)

          A. Check out CoQ10rocksyoursocksoff.com

     6. Advice being offered from someone who doesn't have a thyroid condition - "My favorite cousin's best friend's sister has thyroid disesae and she is fine because she meditates while listening to a CD called Desert Sands twice a week".

     7. Thread "hijacking" or changing the subject - I've seen this act draw the ire of many many people. I personally don't get mad at this because "attention deficit" is what most of us thyroidians do best, watch how quickly a thread can shift subjects, it can be quite comical.

Remember to not say things like:

"In my opinion" (inserting the word "humble" will only make things worse. Ever notice that the people who use the world humble in this phrase...aren't?)

 "Just my point of view"

"This is what think"

Please note: You are probably wrong anyway...ya know...with your brain fog and all, so try not to have a point of view or an opinion.

There you have it, reasons for forum fighting (in my humble opinion). Please don't ever think that the extreme hormonal shifts we suffer from or the mood swings, the fatigue, seeing someone eat junk food and not gain a pound, joint pain or our general malaise has anything to do with the arguments on these forums, on the contrary, it is because of all those scenarios I've mentioned above.

I'll bet the forums having to do with politics or religion don't have the same kind of melees we have.

Kidding aside, I've been a part of many thyroid forums for several years now, and yes an argument breaks out now and then, but this has not deterred me from staying on them. I have met some of the most beautiful, amazing and strong individuals. They have helped me through some tough times. Yes we fight, but we also laugh and cry together. I need my time with these supporters because at the end of the day, they are the ones in my life who get it.

8 comments:

  1. It's just my humble opinion, but I love #6, now there's a cure I haven't tried yet. I'll have to find 'Desert Sands' and get my meditation on. But twice a week? Sigh. There is no end to what us thyroid patients have to do.

    I had strayed away from the thyroid forums for a few years since the advice I always got was to 'talk to my doctor' and 'have additional tests run, not just TSH'----oh, my that was a thigh-slapper, 'talk to my doctor' and have him/her run something than just the TSH? Wow, it would help if my doctor(s) had ears that could hear me.

    Get this, I would be jealous of people on forums who apparently had doctors who knew what they were doing because try as I might, I couldn't find the Magical MD who would work with me. How sick is that, lol? But eventually I went back to lurking in the forums because these people do 'get it', which is more than I can say for most doctors. If nothing else, I could live vicariously through reading the success stories of other patients.

    Finally I took the plunge and posted lab results and armed with the advice from the forums, girded my loins and went to battle with my new MD who, get this, ordered ALL the blood work required without me asking for it, but then sadly, took one look at my TSH and declared me hyperthyroid despite low FT3 and FT4 results. I whipped out my notes from the forum and explained to her the ratios and how the TSH doesn't mean all that much and then she said, "I guess I'll have to refer you to someone else." Noooooooooo.......after a lot of fast talking on my part, I finally did get her to reluctantly raise my dose last week, but she's scared I'll explode or something. At least she ordered the lab work, but for the life of me, WHY not actually use it?

    I'm just as thankful as you are for the forums, what would we do without them? We certainly wouldn't learn anything from most of the doctors out there. If I hadn't come armed with 'forum knowledge' I would have taken the same old advice from my current MD. The definition of insanity.......

    (I also belong to a few gardening forums that get downright rowdy at times, especially the landscaping forums where people post photos of their yards for critique....oh my....."So, you don't like my plastic pink flamingoes?!)

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  2. This post totally cracks me up, Carol! Well written! Another of my pet peeves is when people write "just saying". And what I really hate is when people talk down to me. It is so incredibly rude and we should never assume that somebody is ignorant on a particular topic. I try to tread very carefully when giving advice and because I don't like being told what to do, I don't adopt that tone with others.

    That said, the forums are incredibly useful and I too have met many amazing individuals (some of them in person!) However, I do believe that the moderators make the forums and the less welcoming ones tend to be where bullying or patronizing behavior is tolerated. For that reason, I have very low tolerance for that in the forums that I moderate. XOXO

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    1. Thanks so much for your kind words. I agree 100 % keeping the bullying under control is a must I'm new to this moderating stuff ( recently been asked) it's hard.

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  3. This was hysterical (in my humble opinion) :)

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    1. I've never done this...I feel less alone!!
      "NotCrazyJustSick"...that is the PERFECT name!! That's me too!! :)

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